• Jonathan Shiek

Who Saw That ‘Rahimah Tanpa Rahim’ Tweet Yesterday? It’s Actually No Laughing Matt

Y’all had a good laugh, didn’t you?

I mean, who approved the title anyways? Just scrolling a few comments down I already found a suggestion that sounds WAY better.

Taruk 'Wanita tanpa rahim' pun dh sounds better aiyooo — Baiduri (@BaiduriRazak) January 18, 2021

No, this is not a story about a woman living without a guy named Rahim (makes you wonder which one is he, right? I think the one in the floral suit kot). It’s actually a story about a woman born without a uterus.

Yes , it's called MRKH Syndrome and inspired from Wani Ardy story yang melakonkan watak doktor dalam cerita ni . — smOl bean aidil (@FairyGodPapi) January 18, 2021

This story is not made up. It is an actual syndrome called MRKH or Mayer-Rokitansky-Küster-Hauser syndrome, and it’s more common than you think.

It happens to 1 in roughly 5000 women worldwide. It’s not a sickness, and it cannot be cured. The anomaly happens during fetal development. Babies are born without or with an underdeveloped uterus, cervix and/or vagina but with a normal external genitalia.

Most of the time, it is only detected when a girl reaches puberty age but hasn’t gotten her period yet. Physically they will look like any other woman, with breasts and pubic hair. But MRKH can also cause other health issues such as abnormally formed or positioned kidneys, skeletal abnormalities, hearing loss, or heart defects.

There is no cure for MRKH, although there are several treatments a person with MRKH can choose to do. From creating a functioning vagina, to options for childbearing like surrogacy. There have been several successful uterine transplant, too. 

Currently, the only hospital in Malaysia with MRKH researchers is PPUKM.

More so than medical issues, these strong women face hardships in simply just living their lives.

Imagine being 16 and watching all your friends get their period, while yours never comes.

Imagine being in your 20s and meeting a good man, and then having to tell him you can’t carry his babies.

Or having your aunt ask you for the umpteenth time, ‘When are you getting pregnant?’.

Imagine seeing that tweet, and all of the ignorant, hurtful comments being thrown around. I cannot even begin to imagine their strength.

Normally, women with MRKH will shy away from limelight and some have never even told their immediate family members about it. Topics on sex and genitalia are so taboo in Malaysia that they feel it is easier to just not talk about it. Many have gone for years thinking they are alone in this. 

Thankfully, in Malaysia there is now a local support group <3

MRKH.Malaysia is an active community. It was founded by Wani Ardy, writer/poet, singer-songwriter, and an advocate of MRKH.

She has even appeared on many talk shows with the sole purpose of educating the masses on this issue and hoping to reach out to a person that is still puzzling over what is wrong with them.

TV3 has a massive audience. If done right, ‘Rahimah Tanpa Rahim’ will be an awesome opportunity to highlight one of the many grey areas in life. Hopefully, the next time you want to ask an insensitive question, or laugh at a funny title, you will take a moment to think again.

#mrkhsyndrome #rahimahtanparahim #womenshealth

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